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This blog site has been retired.  Information regarding the Alberta Spinal Cord Injury Initiative can be accessed on the website of the Canadian Paraplegic Association (Alberta) at www.cpa-ab.org

New Logo!

The Alberta SCI Initiative now has its own distinctive logo.  The design reflects our consumer-centred, solutions-driven approach.  "Moving Forward Together" is the slogan chosen by initial partners who collaborated in preparing a proposal to the Government of Alberta for support in providing leadership and innovation in the area of spinal cord injury treatment and quality of life.  The colours coordinate with those of the Rick Hansen Foundation, Rick Hansen Institute, The Alberta Paraplegic Foundation and the Canadian Paraplegic Association (Alberta), reflecting our common purpose.  The image of a person in a wheelchair reflects our dedication to consumer driven results and a recognition of the unique needs of each individual affected by SCI.  The variation in text size gives an impression of forward movement, driven by the needs of people with SCI.  Our logo was created by a designer through designoutpost.com which provides quality design work at reasonable prices by designers from around the globe. 

On a Roll ... The Alberta SCI Action Strategy Maintains its Momentum with Eight Action Plans

It’s been a whirlwind year for the Alberta Spinal Cord Injury Strategy and, like a whirlwind, we’ve been picking up momentum and sweeping people and ideas into the action as we move along.  The Strategy began in 2009 with a plan to bring “stakeholders” – people living with SCI and those who provide them with care and services – from around Alberta together to create a plan to address some of the serious issues that Albertans with SCI face.  Our approach involved a lot of consultation and collaboration:  first to identify the constellation of problems that limit quality of life for people with SCI, next to narrow our focus to a list of three priority issues, third to develop clear-cut strategies to attack those problems, and fourth to implement those strategies.  Today, we are at stage four – implementation – and I’d like to share with you the plans we have for eight exciting projects that will not only bring some immediate improvements to people’s lives, but build the capacity of individuals and agencies to meet their own needs and those of their clients into the future.

The eight projects, or “Action Plans,” address three areas that our stakeholders said were top priority and the starting place for action:  affordable accessible housing, home care / attendant care, and adaptive equipment and devices.  Three Task Teams consisting of about 10 people each were struck to deliberate on these topics and develop strategies that would add capacity to the SCI community and improve quality of life for people with SCI.  Their ideas were reviewed and approved for funding by the SCI Solutions Alliance in October, 2010.   In total, $300,000 in Alliance funding, plus extensive volunteer hours by committee members, and matching donations from other sources will be used to implement the following Action Plans.

Click on the picture above to download a copy of On a Roll.

Community Resource Guide

Knowledge is power, and one of our most important projects is to create a searchable website of local, provincial, national, and international resources to help people increase their knowledge of important information and services available in the areas of housing, home care/attendant care, and adaptive equipment and devices.  We’re designing it to be interactive so that our users can contribute information and comments based on their own experiences.  It will be updated annually.  Our plan is to create a site that meets the needs of consumers, draws a large number of users and eventually attracts the dollars needed to expand it to include other topic areas.

Community Living Attendant Training Program

Many attendant care training programs have been eliminated from Alberta colleges; the programs that remain are expensive, require a lengthy time commitment, and present language barriers for new Canadians, resulting in a shortage of trained care attendants.  In addition, existing training programs are based on institutional care models whereby attendants are accountable to institutional or commercial employers, rather than to the clients they serve.  The Alberta curriculum will be developed, designed and is delivered with the direct involvement of people with disabilities. It will focus on teaching students to be responsive to consumer choice and control over the daily decisions that impact their lives.   Training will be delivered over a much shorter period of time and at a lower cost than existing home care aide programs while still ensuring that graduates have the skills to attend to their clients' needs safely and appropriately. 

  

Evaluation of Supportive Housing Models

In communities across Alberta, the need for a range of accessible housing with supports provided is great and growing.  This project will provide communities with information and next steps to help initiate local supportive housing projects.  First we will be examining existing models in Alberta and elsewhere to identify effective and innovative models that could be replicated.  Then we will be sharing that information with communities, along with a template for a business case and guidelines on how to take the business case to the next level.  The goal is to build capacity for future growth in supportive housing that meets the unique needs of people with SCI and similar physical disabilities so that they can continue to live in the community of their choice.

Residential Accessibility Assessment Tool

There is a confusing array of information out there about accessibility and what constitutes an accessible home.  The confusion creates problems for people needing to find a place to live that meets their specific level of ability.  This project will look at the variety of guidelines, tools and processes that are currently being used to assess and describe the accessibility of homes and create a single, standard guideline that distinguishes between different levels of accessibility.  The assessment tool and process we create will be promoted widely to encourage standardization.  Our long-term hope is that with wide use of a standard tool to conduct audits, a provincial registry could be started to provide easier access to information on accessible homes available for people with SCI and other disabilities.  The tool would also be helpful to people wanting to design or renovate their own home to certain specifications.

Builders' Award

Builders and other people working in the building industry are critical partners in the creation of more accessible and affordable housing.  With a Builders Award we aim to recognize builders, designers and contractors who have shown excellence in accessible home design.  To be successful we not only need to create the award, but market the idea of accessible design.  This project will do both those things, with the goal of creating awareness, relationships, momentum, commitment and overall raising the profile and desirability among builders – and buyers – of accessible design.

Research and Funding for Pressure Relief and Pressure Reduction Devices

Pressure sores are costly and personally devastating problems.  This project will look at the best practices in pressure sore prevention and treatment, and share that information widely with consumers and care providers.  It is also our hope to provide funding through the Solutions Fund specifically for pressure relief and reduction devices.  In this way we address the immediate needs of consumers while potentially encouraging clinicians, service providers and equipment funders to review the effectiveness of their policies and practices in the area of pressure sore prevention and treatment.

Improved Trials for Computer Equipment

Technology is advancing at a rapid rate, and with it, the funding priorities of various programs designed to improve access to computer equipment.  More than ever, funders and consumers need to see and handle the equipment to understand it’s benefits to people with different levels of ability.  Consumers also need time to trial equipment to see what will really work best for them.  This project will provide equipment for people to trial so that they can then go forward confidently with proposals to various funders to obtain the equipment they need to get on with their lives – whether it be plans to go back to school, get a job, or just become more independent and connected to the outside world.

Best Practices Research into Catheter Use

Single use or multi-use catheters – which is best and how do you decide?  This project will look at best practices research and sort through the information to develop a “decision tree” that care providers, consumers and other professionals can refer to in order to determine which type of catheterization is best.  The decision-tree will take into account a person’s lifestyle as well as their health when making recommendations regarding “cathing.”

All eight of these Action Plans are in the beginning stages of implementation and are all scheduled to be completed by March 2012.  And so the whirlwind continues!

On behalf of the Alberta SCI Solutions Alliance, I’d like to thank the dozens of people who have volunteered their time so far to developing the Strategy and the Action Plans and who are now working to implement them.  Their on-going commitment not only help keep us “Rolling” but keeps us “On the Right Track”. 

Funding Available for Pressure Relieving Devices

The Alberta SCI Pressure Relief Device Fund

The Alberta SCI Pressure Relief Device Fund was created to improve the immediate health status and quality of life of Albertans with spinal cord injuries (SCI) dealing with pressure sores by providing funding to purchase appropriate pressure reduction and prevention devices.  The Alberta SCI Pressure Relief Device Fund is available in the form of grants up to $5,000 for individuals with SCI living in the Province of Alberta.

The Alberta SCI Pressure Relief Device Fund is one step in the creation and implementation of the Alberta SCI Action Strategy to enhance the wellbeing of Albertans with SCI by identifying priorities of critical importance, engaging the entire SCI community in the process of addressing identified priorities and informing decision making processes related to present and future investments in SCI related initiatives.

Your application can be mailed, dropped off, couriered, faxed or e-mailed to:

Solutions Coordinator
The Alberta Paraplegic Foundation
305 Hys Centre, 11010 101 Street
Edmonton, Alberta T5H 4B9
Phone:  (780) 424-6312, ext 2227
Fax:  (780) 424-6313
Email:   solutionsfund@paraplegicfoundation.org

APPLICATION FORM AND GUIDELINES

APPLICATION DEADLINE:
Wednesday, June 15, 2011 @ 4:00p.m. MST

Requests for Proposals - Affordable Accessible Housing

Proposals are now being accepted for projects in the area of affordable accessible housing for people with SCI and similar physical disabilities.  The closing date for applications is November 19, 2010.  RFPs are available through the following links, or by contacting Heather Lissel at heather.lissel@cpa-ab.org

RFP Builders' Award
RFP Evaluation of Supportive Housing Models
RFP Residential Assessment Tool

Community Consultation Sessions now underway

Consumer involvement is an important principle underlying our work on the Alberta SCI Action Strategy.  We believe that all consumers are unique and have the right and the responsibility to be involved in decisions that could affect their lives.  Over the next two weeks we will be conducting community consultation sessions with consumers to get their input into the eight SCI Strategy Action Plans.  If you are interested in attending one of these sessions, please contact Heather Lissel at 780-467-4418 or heather.lissel@cpa-ab.org.

If you've missed the session in your community, or are unable to attend, you can still have a say by letting us know what your experiences have been in the areas of housing, home care/attendant care, and adaptive equipment/devices and letting us know what advice you would have to help us make sure the projects we are undertaking in those areas meet your needs.


A feedback form, along with a brief description of the projects we are undertaking is available by contacting Heather at the number above.  We look forward to hearing from you!

Funding is approved and we are On a Roll!

We are pleased to announce that The Alberta Paraplegic Foundation has approved the allocation of $300,000 in Solutions funding to implement eight projects designed to improve quality of life for Albertans with spinal cord injury and similar disabilities.  We would like to thank the more than 30 volunteer Task Team members and their Facilitators for their dedication and hard work to bring this to fruition.  Many of these same individuals have committed to continue working with us as we implement the Action Plans.

The Action Plans address priority issues in the areas of Affordable Accessible Housing, Home Care/Attendant Care, and Adaptive Equipment/Devices.  A list of the Action Plans follows. 

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• An easily searchable, comprehensive internet guide with information on adaptive equipment, housing and home care/attendant care.
• Improved consumer access to trials for computer software and hardware as well as environmental devices.
• Information on pressure-reducing technologies and grant funds available to purchase pressure-reducing equipment and devices.
• Information on best practices in catheter use provided to consumers, caregivers and other service providers in an easy to follow format
• A pilot of the PACE (personal attendant community education) program developed by the Independent Living Resource Centre in Winnipeg Manitoba.  PACE is a 5-week consumer-focused training program for individuals wanting to become paid caregivers.
• An evaluation of supportive housing models with a view to supporting communities' ability to promote supportive housing development locally.
• The development of a province-wide, standard tool to assess home accessibility and making that information available on the web.
• A provincial award to recognize excellence in accessible home design and construction.

Detailed information on each of these projects will be posted shortly or contact Heather Lissel at heather.lissel@cpa-ab.org or 424-6312.

Alberta SCI Solutions Grant Funding - Fall 2010 Call for Applications

The application form and guidelines for the Alberta SCI Solutions Fund will be available on The Alberta Paraplegic Foundation webpage on September 8, 2010, not September 3, 2010 as previously posted.

Alberta SCI Solutions Grant Funding - Fall 2010 Call for Applications

Please note that we will be accepting applications for the Alberta SCI Solutions Grant Funding on September 3rd, 2010. The application deadline is October 15, 2010. The application guidelines and forms can be downloaded from The Alberta Paraplegic Foundation website at www.paraplegicfoundation.org. Please note that there is no longer an Active Living fund and any successful applicants from Spring 2010 will not be considered for funding for this round.

Alberta SCI Solutions & Active Living Grant Funding - Spring 2010 Call for Applications Closed

The Alberta SCI Solutions & Active Living Grant Funding call for applications for the Spring 2010 is now closed. We anticipate notifying successful applicants in July 2010.

Glossary now available

A glossary of terms related to housing, adaptive equipment/devices and home care/attendant care is now available by clicking here.  The glossary will be useful to our Task Teams who will be developing strategies to address issues in these three areas as they related to Albertans with spinal cord injury.

The Alberta SCI Solutions Fund - Email Address Not Working

Hello! For those who have intend to submit an application for funding for the Alberta SCI Solutions Fund or the Alberta SCI Active Living Fund, the email address solutionsfund@paraplegicfoundation.org is not working. Please submit your application using the email address ROSS.NORTON@CPA-AB.ORG or by fax, mail or in-person.

The Alberta Solutions & Active Living Grant Funding - Now Accepting Applications

Applications are now being accepted for both the Alberta SCI Solutions Fund and the Alberta SCI Active Living Fund. Application deadline is Friday, May 14th, 2010 at 4:00pm MST. Eligible applicants include Albertans with spinal cord injuries (including polio and spina bifida) and not-for-profits registered as a charity with the Canada Revenue Agency or a society with the Alberta Societies Act that provide services for Albertans with SCI or looking to expand services for Albertans with SCI. The application forms and guidelines for both funds can be located by going to www.paraplegicfoundation.org. Any questions can be directed to Ross Norton, Solutions Coordinator at the Alberta Paraplegic Foundation, 305 11010 101 Street, Edmonton, Alberta T5H 4B9, phone (780) 424-6312 or email solutionsfund@paraplegicfoundation.org.

Welcome Alberta SCI Action Strategy Task Team Members!

Thank you to all of our dedicated Task Team members who will be working together over the next three months to develop strategies to address issues in housing, home care/attendant care, and adaptive equipment facing Albertans with Spinal Cord Injury.  Below, you will find essential information and resources such as the Terms of Reference for your group and Toolboxes which contain web-based resources on your area of interest.

Please subscribe to this blog (at right).  This is a very quick (15 second) process and you will receive an e-mail when new information is posted.

We are looking forward to working with you ... we are indeed On a Roll ....

On a Roll Task Team Membership List

(to follow)

On a Roll and on the Right Track:  the Alberta SCI Action Strategy

On a Roll: The Alberta SCI Action Strategy, v.2 March 19, 2010

Task Team Terms of Reference

TOR Attendant
TOR Adaptive Equipment
TOR Housing

Toolboxes

Click on the link that pertains to your priority area.  The document contains descriptions and links to websites that contain information on initiatives from around the world.  You may need to click "download" in order for the links to work.  (note:  send us an e-mail if you would like to see any resources added to these Toolboxes).
Adaptive Equipment and Supplies Toolbox
Home Care Attendant Care Toolbox
Housing Toolbox

Alberta SCI Action Strategy Task Teams

Things are moving along with the Alberta SCI Action Strategy, and we are now in the process of forming Task Teams that will investigate and recommend actions to be taken in their area of interest:  Housing, Adaptive Equipment, and Home Care/Attendant Care.  The task teams will be made up of Alberta-based stakeholders from the field of SCI research, policy, and service delivery.  Consumers (ie. people with SCI or another related physical disability) will make up 1/3 of each of the Task Teams.  We're looking to have teams oriented to their jobs in early April.  Each team will have an assigned facilitator to support their work.  See opposite for a profile of our facilitators ...
By June, the Task Teams will have researched, selected, and outlined three or four ideas that, if implemented, would result in a marked improvement in the quality of life of Albertans with SCI.  Their recommendations will go to the Alberta SCI Solutions Alliance for consideration and advice on implementation.  We're on a roll, so subscribe to our blog now to keep up with the action!

Post Forum update and next steps

The Alberta SCI Action Strategy and stakeholders' Forum is now over and the next phase of the project has begun.  We would like to thank the 36 individuals (numbers fluctuated over the day) who participated.  Our evaluation results show that the vast majority were pleased with the process and facilitation and the quality of discussion that took place around the priority areas which are:  housing, home care/attendant care, and adaptive equipment.

The next step is to process all of the comments from these groups and produce a next draft which will be circulated to a wide audience.  We've also begun the process of preparing the Terms of Reference and supporting materials the three task teams in the priority areas will need to continue developing a set of actionable strategies in their respective areas.

A lot is happening, so keep up to date by checking this blog or subscribing (at the right) to receive notice of new postings.

Alberta SCI Action Strategy Stakeholders' Forum, March 6, 2010

On March 6, 2010 a group of about 50 individuals involved in the field of SCI, and people with SCI will gather at the Northlands Edmonton Expo Centre to take the development of the Alberta SCI Action Strategy to the next level.  A draft strategy titled On a Roll and on the Right Track was developed and circulated to participants.  This report will be reviewed, cover to cover, to ensure that the direction we take to address issues in SCI is truly the right one.  Watch for updates as our work progresses.

Overview of Policies, Plans and Strategies

There have been many attempts to generate strong and sustainable policies, plans and strategies, both from a cross-disability perspective and with and SCI focus.  The Alberta SCI Strategy will build on the best of these, giving particular reference to current government policy and to recent, consensus based documents endorsed by the disability community.  This document summarizes high level policy and strategy from 30 of the most relevant sources.  Click here to view.

Delphi Results Are In

The results are in!  Our Delphi Survey to determine the priority areas for action in SCI is complete and consensus has been reached between the 44 consumers and SCI experts who participated.  Their recommendation was to begin the action planning stage around three areas:  1.  Available, accessible and affordable housing;  2.  Home Care/Attendant Care;  and 3.  Adaptive Equipment.  Respondents felt strongly that although there are many valid and important issues facing people with SCI in Alberta, we needed to focus our efforts on only a few.  Within each of the priority areas above, respondents identified several sub-issues.  It will be the job of Task Teams to decide how to deal with these sub-issues.  To stay up-do-date on the work of Task Teams, click on one of the links in the sidebar to subscribe to our blog.

The results of the third and final Round of the Delphi are available here.


Delphi Final Results

Alberta Spinal Cord Injury Bibliography available on-line

As part of the background research that was done to create the Alberta SCI Action Strategy, a comprehensive search of on-line documents and resources was completed in December, 2009.  The Bibliography contains nearly 500 references relating to policies and practices relevant to the area of SCI.  Part I is a bibliography of reviews, best-practices, models, and frameworks in the field of SCI and other related fields (e.g. chronic care).   Part II is a bibliography of resources specific to issues in SCI, including housing, home care/attendant care, adaptive equipment, transportation and several others.  The list provides direct links to the websites where these documents and resources are located.